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Listening Out Loud

Communicating with Joy

On September 10, 2026, Rare Birds Foundation partnered with DEEP to host a webinar to help people connect with loved ones who live with Developmental Epileptic Encephalopathies (DEEs). Centering joy and play, we discussed 4 ways a non-speaking person might communicate and how we can use the principles of clowning and improv to say "Yes, and..." when speaking with a non-speaker. Watch by clicking below!

Thank you for joining our webinar, hosted in collaboration with DEEP! These resources are here to help you continue to connect with joy and listen out loud. They can be downloaded, printed, and shared with those in your life who wish to connect joyfully with your child!

Download Here!

Also...

Sometimes, it can be hard to play with a child with a DEE. Below is an extra resource to help adapt play for children that focuses on changing the environment, not the child!

Download Here

©2025 by Rare Birds Foundation. 

Disclosure:

This site is intended to provide basic educational information about Adenylosuccinate Lyase Deficiency Disorder (ADSLD). It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action regarding medical treatment or otherwise based on the information on this website without first consulting a physician.

 

The information contained in this site is intended for your general education and information only and not for use in pursuing any treatment or course of action. Ultimately, the course of action in treating a given patient must be individualized after a thorough discussion with the patient’s physician(s).

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