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Rediscovering ADSLD, Recording 2, A Conversation with Natalie K. Watson


Natalie Watson shares her experience as a Rare Bird mom from Australia in a discussion about loving, losing and honoring the legacy of her late sons, William and Hamish, who were diagnosed with ADSL Deficiency in 2010. Interspersed with Rare Birds community poll results, the conversation delves into topics including early signs of the disorder, the creation of the Facebook Support Group “Our Journey with ADSL Deficiency” and how it has advanced research into the disorder, paving the way for the formation of Rare Birds Foundation. Referencing her recently published memoir Bigger Than My Body, the discussion is both deeply personal yet universal to the experience of loving a Rare Bird with ADSLD.


 
 
 

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Disclosure:

This site is intended to provide basic educational information about Adenylosuccinate Lyase Deficiency Disorder (ADSLD). It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action regarding medical treatment or otherwise based on the information on this website without first consulting a physician.

 

The information contained in this site is intended for your general education and information only and not for use in pursuing any treatment or course of action. Ultimately, the course of action in treating a given patient must be individualized after a thorough discussion with the patient’s physician(s).

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