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About Rare Birds Foundation

for ADSLD

Rare Birds Foundation came together in 2023 to serve patients and families affected by ADSL Deficiency Disorder, a rare genetic disorder of purine metabolism. 

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Our Mission:

  • Find Treatment Options

  • Find a Cure

  • Support Families Affected by ADSLD

  • Raise Awareness and Increase Access to Testing

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A white family of 4, the two children are disabled and father and daughter are laughing at each other

FIND OUT MORE

Togetherness

NEWLY DIAGNOSED?

You are not alone. 

Find ways to connect with your community and be 'rare together'. 

DNA

RESEARCH

There are teams around the globe doing research on this rare disorder. 

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SUPPORT US

Our all-volunteer organization needs your support. 

WHERE WE ARE

©2023 by Rare Birds Foundation. 

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