In this video, Nicole Lytle provides an impact report for Rare Birds Foundation's second year, highlighting their mission to support families with ADSLD and related purine disorders. She discusses hitting a milestone of 200 documented patients, introduces board members, and highlights various initiatives including research partnerships, the development of a Clinical Care Guide, and educational resources to “Explain ADSLD to a Kid.” Nicole also announces plans for a dedicated

The family of course, is Disorders of Purine Metabolism or DPM. Dr. Marie Zikanova, a Scientific Advisor for Rare Birds Foundation, and...

May 4th is recognized as Bereaved Mother's Day. Today, I'd like to share words from Rare Bird Mom Karen Peet, who lost her son Andrew one...