Apply for a Respite Retreat Here

This application will take approximately 15 minutes. Please answer every question to the best of your ability.

First, please CONFIRM YOUR ELIGIBILITY BELOW.

I understand that the Strong Wings Caregiver Respite Retreat Grant is intended for caregivers of individuals living with ADSL Deficiency or a related Disorder of Purine Metabolism*. By checking the box below, I confirm that I meet this eligibility requirement and am applying to attend a retreat on this basis.

*List of Qualifying Disorders

Adenylosuccinate lyase deficiency (ADSL)
Lesch-Nyhan disease (HPRT1)
Pontocerebellar hypoplasia (AMPD2)
Developmental and epileptic encephalopathy 35 (ITPA)
CAD deficiency (CAD)
ARTS syndrome (PRPS1 Def)
Retinitis pigmentosa type 10 / Leber congenital amaurosis
Adenosine deaminase 2 deficiency
Purine nucleoside phosphorylase deficiency
Orotic aciduria
Miller syndrome
Dihydropyrimidine dehydrogenase deficiency
Dihydropyrimidinase deficiency
Beta-ureidopropionase deficiency
Hyper-IgM syndrome / Hyper-IgM syndrome type 2
X-linked Charcot-Marie-Tooth disease type 5 (CMTX5)

I understand that the STrong Wings Caregiver Respite Retreat Grant is for a caregiver to an individual living with ADSL Deficiency or a related DiBy checking a box below I am confirming that I am eligible to participate in a Respite Retreats' Day Retreat.

I confirm my eligibility.